The power of caregiver knowledge becoming actionable
The Cute Syndrome Foundation Global SCN8A Survey Series
This is an online registry for patients with a diagnosis of an SCN8A gene mutation
For more information on how to register, click here.
This is an online registry for patients with a diagnosis of an SCN8A gene mutation
For more information on how to register, click here.
For Patients
Get Involved
Information collected during this study may be used to help provide opportunities for patients and researchers to collaborate in the rare disease community.
For Researchers
Drive Research
This is a unique rare disease patient registry. Are you interested in using our data to further your rare disease research?